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Previous Webinars - June 24

Welcome by moderators; Anne van der Does & Kiki Waijen-Smit



**Moderators**: Anne van der Does & Kiki Waijen-Smit

**Speaker 1**: Patient participation in medical research: learning it the hard way // **Prof. Dr. P.J. Sterk**

![](https://assets.underline.io/uploads/markdown_image/1/image/beadbe8a3a813266ea356f97d106bf4f.png)

**Prof. Peter Sterk, MD, PhD**, is emeritus professor at the University of Amsterdam with a chair on Phenotyping Chronic Airways Diseases. He works on translational research, linking molecular fingerprints to clinical disease expression in respiratory medicine. He was co-ordinator of the public-private EU-IMI project U-BIOPRED, which has progressed towards validating breathomics in exhaled air using molecular pattern recognition for diagnosis and phenotyping of patients with asthma, COPD or lung cancer. This aims to bring Data Driven Medicine to the clinic



Patient participation in medical research: learning it the hard way


**Moderators**: Anne van der Does & Kiki Waijen-Smit

**Speaker 2**: Patient participation in eHealth research // **Charlotte Poot**

![](https://assets.underline.io/uploads/markdown_image/1/image/f09b1134dd5dee8495b265983af4152a.png)

<br>**Charlotte Poot, PhD student** at Leiden University Medical Center and National eHealth Living Lab, is involved in several projects in which patients are actively involved. From an app that helps children prepare for a visit to the hospital in a playful way, to a smart asthma inhaler that helps people to be loyal to their treatment. In addition, she has set up a patient advisory panel that contributes ideas in all phases of the ACCEPTANCE study (research into a smart asthma inhaler). In 2020, she received the Sterk Participation prize for her work on patient participation in lung care research. She has also been nominated twice for the audience award.

In this webinar, Charlotte shows how she involved patients in (medical) scientific research in different ways and during different phases of scientific research, and what she believes is the great added value of this. She shares her experiences and more importantly, her lessons learned. Finally, she believes that involving patients is not difficult at all, but like all facets of research, you have to give it a lot of thought. 


Patient participation in eHealth research

Q/A Discussion; all speakers and moderators

### Welcome!

Science is about curiosity, blossoming of promising and novel ideas, getting inspired and connecting to other people. The NRS wants to provide and promote this for their members. Unfortunately, the NRS was not able to organize physical meetings in the past year due to the corona pandemic, while there was/is huge pressure on pulmonologists and scientists working in respiratory medicine. Therefore, we have set-up a new series of monthly online events: NRS Webinar, where you can acquire the latest updates within the lung field, and easily (re)connect with fellow members in our digital NRS cafe. 
During the NRS Webinar both a senior speaker and a junior speaker from different institutes will present their work at the online platform; sufficient time has been scheduled for discussions with the audience, via the chat or live. Every month a different theme is presented, and the program has been set up such that translational, clinical and more fundamental research is presented allowing for cross-fertilization of different research areas, various respiratory diseases and the latest technology applied.

For more in-depth discussions or small talk to catch up with researchers on the other side of the country, the NRS webinar is followed by networking time in the virtual NRS caffé. This is a virtual area in which you can join people sitting at a table in small groups and catch up on each other’s business, research activities, plans and challenging new hypotheses. 

If you somehow miss the webinar, fortunately you can see the presentations later at a convenient time, as most presentations will be recorded and are accessible via the NRS website in the members area and here on Underline NRS page under the microphone icon/past sessions.

Hope to see you there,

**Dr. Hermelijn Smits,**
President of the NRS  


![](https://assets.underline.io/uploads/markdown_image/1/image/18a0081d2118960bda4febe883e82f20.png)

**More about the committee team:**:
[Anne van der Does, Ph.D. ](https://drive.google.com/file/d/1xwAvSjb6wN-1yXLZp7ZQxNgk7ZAUFccQ/view?usp=sharing)
// [Karen Moor, M.D. Ph.D. ](https://drive.google.com/file/d/1wAdqUcvR_ivOJQdrVp_MJOo3uGW8PlVm/view?usp=sharing)
// [Kiki Waeijen-Smit, MSc](https://drive.google.com/file/d/1FidFr3DCNql3B4L-8Cwn2SpUd_oYN3Vd/view?usp=sharing) 
//[Maaike de Vries](https://drive.google.com/file/d/1BhE85TFTfGc-QkWI4f3XYBtYqr6bm5Ao/view?usp=sharing)
// [Olaf Geerse, AIOS Longziekten, MD, PhD](https://drive.google.com/file/d/1oampSSw2JrL9kREG47uM-cIRV-Z7H--V/view?usp=sharing) 
// [Samara Jansen, MD ](https://drive.google.com/file/d/1i4EH363yMH4HfSc53b2gXYPKLA5xCVEN/view?usp=sharing)
// [Maarten van den Berge, MD PhD](https://drive.google.com/file/d/1zPoFABdU_00pzQ-vhvnwz53ra8yVrO80/view?usp=sharing)
![](https://assets.underline.io/uploads/markdown_image/1/image/18a0081d2118960bda4febe883e82f20.png)

Netherlands Respiratory Society Webinar Series

Science is about curiosity, blossoming of promising and novel ideas, getting inspired and connecting to other people. The NRS wants to provide and promote this for their members. Unfortunately, the NRS was not able to organize physical meetings in the past year due to the corona pandemic, while there was/is huge pressure on pulmonologists and scientists working in respiratory medicine. Therefore, we have set-up a new series of monthly online events: NRS Webinar, where you can acquire the latest updates within the lung field, and easily (re)connect with fellow members in our digital NRS cafe. 

Do you have any other suggestions or comments?

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